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易15个月耐药,脑转伽玛刀治疗,索拉 易瑞沙3月脑部进展,全放后继续索拉 易

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 楼主| 发表于 2008-4-17 13:47:23 | 显示全部楼层 来自: 中国福建宁德
<p>谢谢大家的祝福。现在除了继续原来的易瑞沙+反应停的治疗外,还在吃一名中医的中药(11付了),目前找的这个中医我还是认可的,吃中药后食欲有所改善,不会象前一段时间吃完就想吐,大便会通畅,目前就是气喘(不算太严重)可能和胸水或气管缩小有关,起床走动头晕(脑部发展?放射性脑损伤?)走路腿脚无力。每天都会有一个时间段的难受,其他还算正常。</p><p>目前的中药方子是:</p><p class="MsoNormal" style="MARGIN: 0cm 0cm 0pt;"><span style="FONT-SIZE: 15pt; FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">明党</span><span lang="EN-US" style="FONT-SIZE: 15pt;"><font face="Times New Roman">30</font></span><span style="FONT-SIZE: 15pt; FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">克</span><span style="FONT-SIZE: 15pt;"><font face="Times New Roman">&nbsp;<span lang="EN-US"><span style="mso-spacerun: yes;">&nbsp;&nbsp;</span><span style="mso-spacerun: yes;">&nbsp;&nbsp;</span></span></font></span><span style="FONT-SIZE: 15pt; FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">白术</span><span lang="EN-US" style="FONT-SIZE: 15pt;"><font face="Times New Roman">12</font></span><span style="FONT-SIZE: 15pt; FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">克</span><span style="FONT-SIZE: 15pt;"><font face="Times New Roman">
                                <span lang="EN-US"><span style="mso-spacerun: yes;">&nbsp;&nbsp;</span><span style="mso-spacerun: yes;">&nbsp;&nbsp;&nbsp;</span></span></font></span><span style="FONT-SIZE: 15pt; FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">建苓</span><span lang="EN-US" style="FONT-SIZE: 15pt;"><font face="Times New Roman">9</font></span><span style="FONT-SIZE: 15pt; FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">克</span><span style="FONT-SIZE: 15pt;"><font face="Times New Roman">&nbsp;<span lang="EN-US"><span style="mso-spacerun: yes;">&nbsp;&nbsp;</span><span style="mso-spacerun: yes;">&nbsp;</span></span></font></span><span style="FONT-SIZE: 15pt; FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">甘草</span><span lang="EN-US" style="FONT-SIZE: 15pt;"><font face="Times New Roman">4</font></span><span style="FONT-SIZE: 15pt; FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">克</span><span lang="EN-US" style="FONT-SIZE: 15pt;"><font face="Times New Roman"><span style="mso-spacerun: yes;">&nbsp;&nbsp; </span></font></span><span style="FONT-SIZE: 15pt; FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">白花蛇舌草</span><span lang="EN-US" style="FONT-SIZE: 15pt;"><font face="Times New Roman">20</font></span><span style="FONT-SIZE: 15pt; FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">克</span><span style="FONT-SIZE: 15pt;"><font face="Times New Roman">
                                <span lang="EN-US"><span style="mso-spacerun: yes;">&nbsp;&nbsp;&nbsp;&nbsp;</span></span></font></span><span style="FONT-SIZE: 15pt; FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">龙葵</span><span lang="EN-US" style="FONT-SIZE: 15pt;"><font face="Times New Roman">15</font></span><span style="FONT-SIZE: 15pt; FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">克</span><span lang="EN-US" style="FONT-SIZE: 15pt;"><font face="Times New Roman"><span style="mso-spacerun: yes;">&nbsp; </span><span style="mso-spacerun: yes;">&nbsp;</span></font></span><span style="FONT-SIZE: 15pt; FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">葶苈</span><span lang="EN-US" style="FONT-SIZE: 15pt;"><font face="Times New Roman">9</font></span><span style="FONT-SIZE: 15pt; FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">克</span><span lang="EN-US" style="FONT-SIZE: 15pt;"><span style="mso-spacerun: yes;"><font face="Times New Roman">&nbsp;&nbsp;&nbsp;&nbsp;&nbsp; </font></span></span><span style="FONT-SIZE: 15pt; FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">杏仁</span><span lang="EN-US" style="FONT-SIZE: 15pt;"><font face="Times New Roman">9</font></span><span style="FONT-SIZE: 15pt; FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">克</span><span style="FONT-SIZE: 15pt;"><font face="Times New Roman">
                                <span lang="EN-US"><span style="mso-spacerun: yes;">&nbsp;&nbsp;</span><span style="mso-spacerun: yes;">&nbsp;</span></span></font></span><span style="FONT-SIZE: 15pt; FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">天花粉</span><span lang="EN-US" style="FONT-SIZE: 15pt;"><font face="Times New Roman">12</font></span><span style="FONT-SIZE: 15pt; FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">克</span><span lang="EN-US" style="FONT-SIZE: 15pt;"><font face="Times New Roman"><span style="mso-spacerun: yes;">&nbsp; </span><span style="mso-spacerun: yes;">&nbsp;&nbsp;&nbsp;&nbsp;</span></font></span><span style="FONT-SIZE: 15pt; FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">沙参</span><span lang="EN-US" style="FONT-SIZE: 15pt;"><font face="Times New Roman">20</font></span><span style="FONT-SIZE: 15pt; FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">克</span><span lang="EN-US" style="FONT-SIZE: 15pt;"><span style="mso-spacerun: yes;"><font face="Times New Roman">&nbsp;&nbsp;&nbsp;&nbsp;&nbsp; </font></span></span><span style="FONT-SIZE: 15pt; FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">薏仁</span><span lang="EN-US" style="FONT-SIZE: 15pt;"><font face="Times New Roman">30</font></span><span style="FONT-SIZE: 15pt; FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">克</span><span lang="EN-US" style="FONT-SIZE: 15pt;"><span style="mso-spacerun: yes;"><font face="Times New Roman">&nbsp;&nbsp;&nbsp; </font></span></span><span style="FONT-SIZE: 15pt; FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">车前子</span><span lang="EN-US" style="FONT-SIZE: 15pt;"><font face="Times New Roman">15</font></span><span style="FONT-SIZE: 15pt; FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">克&nbsp;&nbsp;&nbsp;&nbsp; </span><span style="FONT-SIZE: 15pt; FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">炒苏子</span><span lang="EN-US" style="FONT-SIZE: 15pt;"><font face="Times New Roman">6</font></span><span style="FONT-SIZE: 15pt; FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">克</span><span lang="EN-US" style="FONT-SIZE: 15pt;"><span style="mso-spacerun: yes;"><font face="Times New Roman">&nbsp;&nbsp;&nbsp; </font></span></span><span style="FONT-SIZE: 15pt; FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">山海螺(四叶参)</span><span lang="EN-US" style="FONT-SIZE: 15pt;"><font face="Times New Roman">15</font></span><span style="FONT-SIZE: 15pt; FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">克</span><span lang="EN-US" style="FONT-SIZE: 15pt;"><p></p></span></p><p>药都算适用的中药,现在就是看疗效了。再过几天就要复诊改方子了。</p>

点评

这基本就是一个调理脾胃的方子,抗癌的作用应该是不会有  发表于 2013-12-29 12:10
有爱,就有奇迹!
 楼主| 发表于 2008-4-17 14:15:17 | 显示全部楼层 来自: 中国福建宁德
<p><font color="#0000ff" size="4">一直压抑的记录母亲的病情,今天想写写我那可爱的外婆,自从母亲生病后,84岁的外婆就一直担心着,隔几天就要打电话来问,经常托人在村庄里买土鸡蛋,寄上来每次都交代除了我母亲任何人都不能吃,舅舅们给她的生活费都攒着,上次母亲住院,外婆一定要来看我母亲,就把攒的1000元钱偷偷的塞给她,要她买瓶挂她就怕我母亲节约惯了,舍不得花钱看病,走了就交代我一定照顾好一根头发都不能少,要不唯我是问。</font></p><p><font color="#0000ff" size="4">前天,舅舅们来家里说外婆绝食,外婆打电话给他们说,自己要死了什么东西都吃不下了,他们一个个的赶下去看她,问她想要吃什么带给她,外婆说什么都不想吃,就拿钱给她就行了。妈妈知道了觉的又好气又好笑,外婆又想给她攒药费了,哎,这就是血浓于水,孩子永远是母亲的心头肉啊,不管你多大,在她眼里永远是她的心肝宝贝。明天我要带点吃的去看看我那可爱的外婆。</font></p>
[此贴子已经被作者于2008-4-17 14:15:57编辑过]

点评

这外婆是可爱啊,感动  发表于 2013-12-29 11:52
有爱,就有奇迹!
发表于 2008-4-17 14:19:19 | 显示全部楼层 来自: 中国山东临沂
<font face="楷体_GB2312" size="4">真是好可爱的外婆啊,很感动!亲情永远都是最温馨的!</font>
有爱,就有奇迹!
 楼主| 发表于 2008-4-18 18:25:49 | 显示全部楼层 来自: 中国福建宁德
<p><font size="5">今天复查了CEA是45.6比3月25日复查的43.2又高了2.4,相对来讲高的不是很多,但是还是没有什么好办法,化疗还是暂时不考虑,继续用中药,下个月再检查一下了。</font></p>
有爱,就有奇迹!
发表于 2008-4-18 20:42:07 | 显示全部楼层 来自: 中国福建福州
<p>Lang哥哥,一直关注你妈妈的病情,希望一切安好~</p><p>CEA升高2.4并不是很大的变化,有可能是检查的误差.你们的CEA变化相对于我妈妈的来说真的是很低了...我妈妈在化疗PR时CEA还高达520+,真的叫人担心.</p><p>另外,看到你描述可爱的外婆,就想到我的外婆,妈妈是她最小的女儿,也是她现在最心心念念放不下的孩子.3月14日我87岁的外公去世,外婆有一周时间血压持续升高,哭着给我妈妈打电话,说现在最放心不下她.真的是这样,无论孩子长多大,永远是父母最牵挂的心头肉.</p><p></p>
有爱,就有奇迹!
发表于 2008-4-21 17:21:29 | 显示全部楼层 来自: 中国福建莆田
<p>呵呵,跟我的外婆一样可爱哦,孩子永远是父母的心头肉。</p><p>祝你妈妈一切安好!</p>
有爱,就有奇迹!
发表于 2008-4-24 14:54:03 | 显示全部楼层 来自: 中国山东临沂
<font face="楷体_GB2312" size="4">lang版,CEA山上2.4,的确是不能说明问题的,一般上下相差微小的几个数值都不能说明什么问题的.只要妈妈的生活质量和状态一直不错就可以了,期待你的好消息.</font>
有爱,就有奇迹!
 楼主| 发表于 2008-4-24 16:15:37 | 显示全部楼层 来自: 中国福建宁德
<p>谢谢大家关心,今天去中医那里复诊了一下,药方在原来的又加了2名,:</p><p class="MsoNormal" style="MARGIN: 0cm 0cm 0pt;"><span style="FONT-SIZE: 15pt; FONT-FAMILY: 宋体; mso-ascii-font-family: 'mso-hansi-font-family:';">明党</span><span lang="EN-US" style="FONT-SIZE: 15pt;"><font face="Times New Roman">30</font></span><span style="FONT-SIZE: 15pt; FONT-FAMILY: 宋体; mso-ascii-font-family: 'mso-hansi-font-family:';">克</span><span style="FONT-SIZE: 15pt;"><font face="Times New Roman">&nbsp;<span lang="EN-US"><span style="mso-spacerun: yes;">&nbsp;&nbsp;</span><span style="mso-spacerun: yes;">&nbsp;&nbsp;</span></span></font></span><span style="FONT-SIZE: 15pt; FONT-FAMILY: 宋体; mso-ascii-font-family: 'mso-hansi-font-family:';">白术</span><span lang="EN-US" style="FONT-SIZE: 15pt;"><font face="Times New Roman">12</font></span><span style="FONT-SIZE: 15pt; FONT-FAMILY: 宋体; mso-ascii-font-family: 'mso-hansi-font-family:';">克</span><span style="FONT-SIZE: 15pt;"><font face="Times New Roman">
                                <span lang="EN-US"><span style="mso-spacerun: yes;">&nbsp;&nbsp;</span><span style="mso-spacerun: yes;">&nbsp;&nbsp;&nbsp;</span></span></font></span><span style="FONT-SIZE: 15pt; FONT-FAMILY: 宋体; mso-ascii-font-family: 'mso-hansi-font-family:';">建苓</span><span lang="EN-US" style="FONT-SIZE: 15pt;"><font face="Times New Roman">9</font></span><span style="FONT-SIZE: 15pt; FONT-FAMILY: 宋体; mso-ascii-font-family: 'mso-hansi-font-family:';">克</span><span style="FONT-SIZE: 15pt;"><font face="Times New Roman">&nbsp;<span lang="EN-US"><span style="mso-spacerun: yes;">&nbsp;&nbsp;</span><span style="mso-spacerun: yes;">&nbsp;</span></span></font></span><span style="FONT-SIZE: 15pt; FONT-FAMILY: 宋体; mso-ascii-font-family: 'mso-hansi-font-family:';">甘草</span><span lang="EN-US" style="FONT-SIZE: 15pt;"><font face="Times New Roman">4</font></span><span style="FONT-SIZE: 15pt; FONT-FAMILY: 宋体; mso-ascii-font-family: 'mso-hansi-font-family:';">克</span><span lang="EN-US" style="FONT-SIZE: 15pt;"><font face="Times New Roman"><span style="mso-spacerun: yes;">&nbsp;&nbsp; </span></font></span><span style="FONT-SIZE: 15pt; FONT-FAMILY: 宋体; mso-ascii-font-family: 'mso-hansi-font-family:';">白花蛇舌草</span><span lang="EN-US" style="FONT-SIZE: 15pt;"><font face="Times New Roman">20</font></span><span style="FONT-SIZE: 15pt; FONT-FAMILY: 宋体; mso-ascii-font-family: 'mso-hansi-font-family:';">克</span><span style="FONT-SIZE: 15pt;"><font face="Times New Roman">
                                <span lang="EN-US"><span style="mso-spacerun: yes;">&nbsp;&nbsp;&nbsp;&nbsp;</span></span></font></span><span style="FONT-SIZE: 15pt; FONT-FAMILY: 宋体; mso-ascii-font-family: 'mso-hansi-font-family:';">龙葵</span><span lang="EN-US" style="FONT-SIZE: 15pt;"><font face="Times New Roman">15</font></span><span style="FONT-SIZE: 15pt; FONT-FAMILY: 宋体; mso-ascii-font-family: 'mso-hansi-font-family:';">克</span><span lang="EN-US" style="FONT-SIZE: 15pt;"><font face="Times New Roman"><span style="mso-spacerun: yes;">&nbsp; </span><span style="mso-spacerun: yes;">&nbsp;</span></font></span><span style="FONT-SIZE: 15pt; FONT-FAMILY: 宋体; mso-ascii-font-family: 'mso-hansi-font-family:';">葶苈</span><span lang="EN-US" style="FONT-SIZE: 15pt;"><font face="Times New Roman">9</font></span><span style="FONT-SIZE: 15pt; FONT-FAMILY: 宋体; mso-ascii-font-family: 'mso-hansi-font-family:';">克</span><span lang="EN-US" style="FONT-SIZE: 15pt;"><span style="mso-spacerun: yes;"><font face="Times New Roman">&nbsp;&nbsp;&nbsp;&nbsp;&nbsp; </font></span></span><span style="FONT-SIZE: 15pt; FONT-FAMILY: 宋体; mso-ascii-font-family: 'mso-hansi-font-family:';">杏仁</span><span lang="EN-US" style="FONT-SIZE: 15pt;"><font face="Times New Roman">9</font></span><span style="FONT-SIZE: 15pt; FONT-FAMILY: 宋体; mso-ascii-font-family: 'mso-hansi-font-family:';">克</span><span style="FONT-SIZE: 15pt;"><font face="Times New Roman">
                                <span lang="EN-US"><span style="mso-spacerun: yes;">&nbsp;&nbsp;</span><span style="mso-spacerun: yes;">&nbsp;</span></span></font></span><span style="FONT-SIZE: 15pt; FONT-FAMILY: 宋体; mso-ascii-font-family: 'mso-hansi-font-family:';">天花粉</span><span lang="EN-US" style="FONT-SIZE: 15pt;"><font face="Times New Roman">12</font></span><span style="FONT-SIZE: 15pt; FONT-FAMILY: 宋体; mso-ascii-font-family: 'mso-hansi-font-family:';">克</span><span lang="EN-US" style="FONT-SIZE: 15pt;"><font face="Times New Roman"><span style="mso-spacerun: yes;">&nbsp; </span><span style="mso-spacerun: yes;">&nbsp;&nbsp;&nbsp;&nbsp;</span></font></span><span style="FONT-SIZE: 15pt; FONT-FAMILY: 宋体; mso-ascii-font-family: 'mso-hansi-font-family:';">沙参</span><span lang="EN-US" style="FONT-SIZE: 15pt;"><font face="Times New Roman">20</font></span><span style="FONT-SIZE: 15pt; FONT-FAMILY: 宋体; mso-ascii-font-family: 'mso-hansi-font-family:';">克</span><span lang="EN-US" style="FONT-SIZE: 15pt;"><span style="mso-spacerun: yes;"><font face="Times New Roman">&nbsp;&nbsp;&nbsp;&nbsp;&nbsp; </font></span></span><span style="FONT-SIZE: 15pt; FONT-FAMILY: 宋体; mso-ascii-font-family: 'mso-hansi-font-family:';">薏仁</span><span lang="EN-US" style="FONT-SIZE: 15pt;"><font face="Times New Roman">30</font></span><span style="FONT-SIZE: 15pt; FONT-FAMILY: 宋体; mso-ascii-font-family: 'mso-hansi-font-family:';">克</span><span lang="EN-US" style="FONT-SIZE: 15pt;"><span style="mso-spacerun: yes;"><font face="Times New Roman">&nbsp;&nbsp;&nbsp; </font></span></span><span style="FONT-SIZE: 15pt; FONT-FAMILY: 宋体; mso-ascii-font-family: 'mso-hansi-font-family:';">车前子</span><span lang="EN-US" style="FONT-SIZE: 15pt;"><font face="Times New Roman">15</font></span><span style="FONT-SIZE: 15pt; FONT-FAMILY: 宋体; mso-ascii-font-family: 'mso-hansi-font-family:';">克&nbsp;&nbsp;&nbsp;&nbsp; </span><span style="FONT-SIZE: 15pt; FONT-FAMILY: 宋体; mso-ascii-font-family: 'mso-hansi-font-family:';">炒苏子</span><span lang="EN-US" style="FONT-SIZE: 15pt;"><font face="Times New Roman">6</font></span><span style="FONT-SIZE: 15pt; FONT-FAMILY: 宋体; mso-ascii-font-family: 'mso-hansi-font-family:';">克</span><span lang="EN-US" style="FONT-SIZE: 15pt;"><span style="mso-spacerun: yes;"><font face="Times New Roman">&nbsp;&nbsp;&nbsp; </font></span></span><span style="FONT-SIZE: 15pt; FONT-FAMILY: 宋体; mso-ascii-font-family: 'mso-hansi-font-family:';">山海螺(四叶参)</span><span lang="EN-US" style="FONT-SIZE: 15pt;"><font face="Times New Roman">15</font></span><span style="FONT-SIZE: 15pt; FONT-FAMILY: 宋体; mso-ascii-font-family: 'mso-hansi-font-family:';">克</span><span lang="EN-US" style="FONT-SIZE: 15pt;">
                        <font color="#f73809">娄实15克&nbsp; 白扣8克</font><p>过一段要去复查脑部核磁了,中药还是继续吃着看看了。</p></span></p><p>过一段要去复查脑部核磁了,中药还是继续吃着看看了。</p>
有爱,就有奇迹!
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