再见了妈妈。女儿将您剩下的药物在此捐赠，希望您走后还能继续帮助活在这个世界上的

杏仁露

<p><font face="楷体_GB2312" size="4"><strong>妈妈非小细胞肺癌,腺鳞结合,06.6发现时3期. 到现在化疗过两次(都半途而废,因为反应太大,而且后来检查效果几乎没有,肿瘤还在化疗期间长大),放疗四五次,吃光量已经超了. 07.4-08.4吃易瑞莎,耐药后肿瘤又明显发展,再吃特罗凯,至今一个多月未有明显效果(皮疹腹泄也只有一点,但持续存在). </strong></font></p>
<p><font face="楷体_GB2312" size="4"><strong>吃易和吃特,都是肿瘤科主任给的方子,但看了大家的易耐药方案,不知道为什么医生没给力比泰方案,我家是合肥,难道合肥最大的医院没有这个药吗?</strong></font></p>
<p><font face="楷体_GB2312" size="4"><strong>现在妈妈身体一天比一天虚弱,走路已经摇摇晃晃,偶尔会咳嗽得喘不上气,睡觉时平躺会胸闷,呛咳,侧躺会胸疼.一定要改治疗方法了,不能这样拖下去. 可是现在是应该想办法上力比泰的方案还是到北京找黄金昶,或者哈尔滨的张宗歧呢?</strong></font></p>
<p><strong><font face="楷体_GB2312" size="4">现在要妈妈出门是件大事,一定要安排好所有的东西,保证是比较好的去向,才能让她动.而且,每给她一次希望,再失败,都会让她更加绝望.妈妈很坚强,这两年一直很坚强,可是在易耐药后这一两个月,明显一天比一天差,她也开始情绪不好了...</font></strong></p>
<p><strong><font face="楷体_GB2312" size="4">大家有意见的给点意见吧!</font></strong></p>
<p><strong><font face="楷体_GB2312" size="4">更新见跟贴.谢谢大家帮助!</font></strong></p><br/><br/>
<p><font face="Verdana">2008.8.20</font></p>
<p><font face="Verdana">&nbsp;&nbsp;&nbsp; 2008年8月15日晨,母亲终因呼吸困难逝世.享年57岁. </font></p>
<p><font face="Verdana">&nbsp;&nbsp;&nbsp; 感谢这半年多来坛里各位的帮助和关心.将剩下的药物捐赠.</font></p>
<p><font face="Verdana"></font>&nbsp;</p>
<p><font face="Verdana">&nbsp;&nbsp;&nbsp; 英版易瑞沙14粒. （吃6个月有效后获赠的药）</font></p>
<p><font face="Verdana">&nbsp;&nbsp;&nbsp; 瑞士罗氏 特罗凯 12粒.&nbsp; （安徽医科大学第一附属医院购的药）</font></p>
<p><font face="Verdana">&nbsp;&nbsp; </font></p>
<p>&nbsp;&nbsp;&nbsp; </p>
<p><font face="Verdana">&nbsp;&nbsp;&nbsp; 因为都是正版药物,很贵的药,最好是想试用的病友来申请,一般3-5粒病人即可感觉到是否有效.</font></p>
<p><font face="Verdana">&nbsp;&nbsp;&nbsp; 也请得到我母亲帮助的朋友,为我的母亲祈祷祝福.</font></p>
<p><font face="Verdana"></font>&nbsp;</p>
<p><font face="Verdana">&nbsp;&nbsp;&nbsp; 需要的朋友加我QQ24119043 这几天我会隐身在线.</font></p>
<p><font face="Verdana"></font>&nbsp;</p>
<p><font face="Verdana">S：对于申请的人，也许我会问许多问题，希望您能认真配合，因为不想这么昂贵的药物落到不该得到的人手里。</font></p>
<p><font face="Verdana">&nbsp;&nbsp;&nbsp;&nbsp;&nbsp; 最好是合肥的病友，可以当面了解。</font></p>
<p><font face="Verdana">&nbsp;&nbsp;&nbsp;&nbsp;&nbsp; 药贩请自重！</p>
<p><br/>8.22</p>
<p>&nbsp;</p>
<p>&nbsp;&nbsp;&nbsp;&nbsp; 易瑞沙14粒已经分两次捐完.一位深圳病友,一位西安病友,深圳的已于8.22下午快递邮出,西安的准备明天8.23快递邮出. 因为是QQ联系,不知道在论坛的名字,请跟贴证明.谢谢!</p></font>

[此贴子已经被作者于2008-8-22 19:01:18编辑过]

我爱妈妈1982

<p><font color="#119911"><span style="FONT-SIZE: 14pt; FONT-FAMILY: 宋体; mso-bidi-font-size: 12.0pt; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;; mso-bidi-font-family: &quot;Times New Roman&quot;; mso-font-kerning: 1.0pt; mso-ansi-language: EN-US; mso-fareast-language: ZH-CN; mso-bidi-language: AR-SA;">杏仁露，你妈妈和我妈妈的情况很像啊，我妈妈也是确诊时化疗两次，方案是多西他赛</span><span lang="EN-US" style="FONT-SIZE: 14pt; FONT-FAMILY: &quot;Times New Roman&quot;; mso-bidi-font-size: 12.0pt; mso-font-kerning: 1.0pt; mso-ansi-language: EN-US; mso-fareast-language: ZH-CN; mso-bidi-language: AR-SA; mso-fareast-font-family: 宋体;">+</span><span style="FONT-SIZE: 14pt; FONT-FAMILY: 宋体; mso-bidi-font-size: 12.0pt; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;; mso-bidi-font-family: &quot;Times New Roman&quot;; mso-font-kerning: 1.0pt; mso-ansi-language: EN-US; mso-fareast-language: ZH-CN; mso-bidi-language: AR-SA;">卡铂，两次的副作用都很大，恶心呕吐，白细胞</span><span lang="EN-US" style="FONT-SIZE: 14pt; FONT-FAMILY: &quot;Times New Roman&quot;; mso-bidi-font-size: 12.0pt; mso-font-kerning: 1.0pt; mso-ansi-language: EN-US; mso-fareast-language: ZH-CN; mso-bidi-language: AR-SA; mso-fareast-font-family: 宋体;">1900</span><span style="FONT-SIZE: 14pt; FONT-FAMILY: 宋体; mso-bidi-font-size: 12.0pt; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;; mso-bidi-font-family: &quot;Times New Roman&quot;; mso-font-kerning: 1.0pt; mso-ansi-language: EN-US; mso-fareast-language: ZH-CN; mso-bidi-language: AR-SA;">，肺感染，第一次评价只是稳定，第二次化疗后，病情就进展了，双肺弥漫小结节，磨皮玻璃样变，一活动和说话就气喘，几乎</span><span lang="EN-US" style="FONT-SIZE: 14pt; FONT-FAMILY: &quot;Times New Roman&quot;; mso-bidi-font-size: 12.0pt; mso-font-kerning: 1.0pt; mso-ansi-language: EN-US; mso-fareast-language: ZH-CN; mso-bidi-language: AR-SA; mso-fareast-font-family: 宋体;">24</span><span style="FONT-SIZE: 14pt; FONT-FAMILY: 宋体; mso-bidi-font-size: 12.0pt; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;; mso-bidi-font-family: &quot;Times New Roman&quot;; mso-font-kerning: 1.0pt; mso-ansi-language: EN-US; mso-fareast-language: ZH-CN; mso-bidi-language: AR-SA;">小时吸氧，没办法只能试试易瑞沙了，从</span><span lang="EN-US" style="FONT-SIZE: 14pt; FONT-FAMILY: &quot;Times New Roman&quot;; mso-bidi-font-size: 12.0pt; mso-font-kerning: 1.0pt; mso-ansi-language: EN-US; mso-fareast-language: ZH-CN; mso-bidi-language: AR-SA; mso-fareast-font-family: 宋体;">2007</span><span style="FONT-SIZE: 14pt; FONT-FAMILY: 宋体; mso-bidi-font-size: 12.0pt; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;; mso-bidi-font-family: &quot;Times New Roman&quot;; mso-font-kerning: 1.0pt; mso-ansi-language: EN-US; mso-fareast-language: ZH-CN; mso-bidi-language: AR-SA;">年</span><span lang="EN-US" style="FONT-SIZE: 14pt; FONT-FAMILY: &quot;Times New Roman&quot;; mso-bidi-font-size: 12.0pt; mso-font-kerning: 1.0pt; mso-ansi-language: EN-US; mso-fareast-language: ZH-CN; mso-bidi-language: AR-SA; mso-fareast-font-family: 宋体;">11</span><span style="FONT-SIZE: 14pt; FONT-FAMILY: 宋体; mso-bidi-font-size: 12.0pt; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;; mso-bidi-font-family: &quot;Times New Roman&quot;; mso-font-kerning: 1.0pt; mso-ansi-language: EN-US; mso-fareast-language: ZH-CN; mso-bidi-language: AR-SA;">月</span><span lang="EN-US" style="FONT-SIZE: 14pt; FONT-FAMILY: &quot;Times New Roman&quot;; mso-bidi-font-size: 12.0pt; mso-font-kerning: 1.0pt; mso-ansi-language: EN-US; mso-fareast-language: ZH-CN; mso-bidi-language: AR-SA; mso-fareast-font-family: 宋体;">7</span><span style="FONT-SIZE: 14pt; FONT-FAMILY: 宋体; mso-bidi-font-size: 12.0pt; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;; mso-bidi-font-family: &quot;Times New Roman&quot;; mso-font-kerning: 1.0pt; mso-ansi-language: EN-US; mso-fareast-language: ZH-CN; mso-bidi-language: AR-SA;">日开始服用，有效，但是我妈妈没有你妈妈这么幸运，才吃了六个多月时就耐药了，我一点思想准备都没有啊，医生说易的耐药期因人而异的有</span><span lang="EN-US" style="FONT-SIZE: 14pt; FONT-FAMILY: &quot;Times New Roman&quot;; mso-bidi-font-size: 12.0pt; mso-font-kerning: 1.0pt; mso-ansi-language: EN-US; mso-fareast-language: ZH-CN; mso-bidi-language: AR-SA; mso-fareast-font-family: 宋体;">3</span><span style="FONT-SIZE: 14pt; FONT-FAMILY: 宋体; mso-bidi-font-size: 12.0pt; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;; mso-bidi-font-family: &quot;Times New Roman&quot;; mso-font-kerning: 1.0pt; mso-ansi-language: EN-US; mso-fareast-language: ZH-CN; mso-bidi-language: AR-SA;">个月到</span><span lang="EN-US" style="FONT-SIZE: 14pt; FONT-FAMILY: &quot;Times New Roman&quot;; mso-bidi-font-size: 12.0pt; mso-font-kerning: 1.0pt; mso-ansi-language: EN-US; mso-fareast-language: ZH-CN; mso-bidi-language: AR-SA; mso-fareast-font-family: 宋体;">3</span><span style="FONT-SIZE: 14pt; FONT-FAMILY: 宋体; mso-bidi-font-size: 12.0pt; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;; mso-bidi-font-family: &quot;Times New Roman&quot;; mso-font-kerning: 1.0pt; mso-ansi-language: EN-US; mso-fareast-language: ZH-CN; mso-bidi-language: AR-SA;">年不等，没有办法耐药了也要面对。我这些天也是在为下一步的方案奔走啊，我很理解你现在的心情，我也是不敢再给妈妈做化疗了，有上次化疗的经历，我很担心这次化疗也像上次一样，不能耐受副作用不说，反倒加速了病情的发展，我也想直接换特罗凯，可是看到这么多病友，易耐药后换特基本上都无效，我也没信心了，现在是进退两难啊！从</span><span lang="EN-US" style="FONT-SIZE: 14pt; FONT-FAMILY: &quot;Times New Roman&quot;; mso-bidi-font-size: 12.0pt; mso-font-kerning: 1.0pt; mso-ansi-language: EN-US; mso-fareast-language: ZH-CN; mso-bidi-language: AR-SA; mso-fareast-font-family: 宋体;">6</span><span style="FONT-SIZE: 14pt; FONT-FAMILY: 宋体; mso-bidi-font-size: 12.0pt; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;; mso-bidi-font-family: &quot;Times New Roman&quot;; mso-font-kerning: 1.0pt; mso-ansi-language: EN-US; mso-fareast-language: ZH-CN; mso-bidi-language: AR-SA;">月</span><span lang="EN-US" style="FONT-SIZE: 14pt; FONT-FAMILY: &quot;Times New Roman&quot;; mso-bidi-font-size: 12.0pt; mso-font-kerning: 1.0pt; mso-ansi-language: EN-US; mso-fareast-language: ZH-CN; mso-bidi-language: AR-SA; mso-fareast-font-family: 宋体;">3</span><span style="FONT-SIZE: 14pt; FONT-FAMILY: 宋体; mso-bidi-font-size: 12.0pt; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;; mso-bidi-font-family: &quot;Times New Roman&quot;; mso-font-kerning: 1.0pt; mso-ansi-language: EN-US; mso-fareast-language: ZH-CN; mso-bidi-language: AR-SA;">日复查</span><span lang="EN-US" style="FONT-SIZE: 14pt; FONT-FAMILY: &quot;Times New Roman&quot;; mso-bidi-font-size: 12.0pt; mso-font-kerning: 1.0pt; mso-ansi-language: EN-US; mso-fareast-language: ZH-CN; mso-bidi-language: AR-SA; mso-fareast-font-family: 宋体;">CT</span><span style="FONT-SIZE: 14pt; FONT-FAMILY: 宋体; mso-bidi-font-size: 12.0pt; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;; mso-bidi-font-family: &quot;Times New Roman&quot;; mso-font-kerning: 1.0pt; mso-ansi-language: EN-US; mso-fareast-language: ZH-CN; mso-bidi-language: AR-SA;">显示耐药到现在肺部的症状还不是太明显，所以我还是让我妈继续吃易，皮疹还是有的。还有就是胸科的主任也提到阿瓦斯丁了，好像我们这也不好买的，还有就是费用，听说贵的惊人，我家是工薪阶层，哎！我们要多沟通啊，有什么问题和经验多交流。祝好！</span></font></p>

奚琴

<p>病人身体虚弱，经不起折腾的，又何况，我们折腾来折腾去又能给病人减少多少痛苦呢？</p><p>我爸爸也面临无路可走的状态，我打内心里不愿让他去医院了，化疗太冒险，住院对他造成的心里压力也会很大，特别是在隐瞒病情的情况下。得不偿失。</p><p>不去医院又怕爸爸伤心，他会不会感觉儿女们把他抛弃不管了，那样岂不更痛心。</p><p>我现在很重视病人的精神和饭食，想方设法保证好这两样。其余再尝试点无毒的偏方，比如吃壁虎粉。走投无路了。。。。</p>

杏仁露

<font face="楷体_GB2312" size="4"><strong>唉,还好,我妈妈是从开始就知道病情的(知道大多数). 确实,也不敢轻易谈化疗了,上两次化疗的失败,对妈妈不仅在身体上造成了巨大的伤害,更是在心理上粉碎了对化疗的希望,所以对力比泰方案,一直不敢提...可是这样姑息,只是吃特罗凯以赚取心理安慰,是不行的啊!怎么办怎么办!!</strong></font>

冷雨飘香

<p><font size="4">唉，我知道此时说再多安慰的话都显得很无力。我妈妈服易也耐药了，我现在和你面临同样的困惑！</font></p><p><font size="4">和奚琴的观点一样，我不建议你再带妈妈四处求医！癌症的治疗，全世界无非都那几种方法，放化疗、X刀、伽玛刀、靶向、中医。。。。。。合肥是省会城市，力比泰肯定会有，如果打算用，建议你再多询问三甲医院。</font></p><p><font size="4">看你的描述，你妈妈的体力已经有些虚弱了，再四处奔波，反而不得休息会更吃不消。至于你提到的张宗歧，是北京的中医大夫。我上周刚带妈妈去问过诊，领取了一些中医。是北京普祥中医肿瘤医院的。因为妈妈刚刚服用，效果还不清楚。我们也是病急乱投医！多给妈妈些精神鼓励，如果能够中西医结合，或许会带来些好效果！</font></p><p><font size="4">祝福我们的亲人！</font></p>

zerglsc

说实话，省立真的不怎么样，我妈妈是4期，在省立做了三次化疗，现在身体很差，最后主治医师居然调走了。开始考虑易瑞沙了，买不起英版，又找不到印版途径，真是有点绝望。[em10]

杏仁露

<p><font face="楷体_GB2312" size="4"><strong>这么多同病中人啊</strong></font></p><p><font face="楷体_GB2312" size="4"><strong>妈妈是在安医看的,不是省立. 让人郁闷的是,放疗主任开放疗的方子,肿瘤主任开他的方子,两个都算主治医生,也都不能算. 还相互说对方的疗法不对...郁闷.</strong></font></p><p><font face="楷体_GB2312" size="4"><strong>有人知道鸭蛋籽是什么吗?上周看了省立的林主任(中医),她给提到的药,可是在网上查,却只查到治疗"瘊子""疣"什么的资料,求助!</strong></font></p>

CLOUDY

我也是安徽合肥的，老爸肺鳞两年了，瘦弱不堪，前一阵子咳血、浮肿住院，现在决定吃特罗凯了，但愿有效！鸦胆子是中成药，据说治疗脑转有些效果。QQ：369693915