妹妹的肺癌治疗史

xiexie158 · 发表于 2007-3-7 22:44:38

我妹妹，年52岁。一生多灾多难，刚创业初见成效，不想一场灭顶之灾突然降临。刚一查出，就是相当晚期，颅底髋关节等处多处转移。到处找医院，各家各说法，听听都有道理，搞得无所适从，不知怎么办才好。张秀莲大姐（是大姐还是小姐不知道）友情提示我说，不能都听医生的，要自己拿主意，选择自己认为最合适的。这倒也是，就拿化疗疗程来说吧，网上查下来，各种信息指示，3~4个为好，但在我们就医的上海85医院的那个医生，还一口咬紧，起码5个疗程。就是她开的出院小结我没注意看，今天出示给龙华医院的刘嘉湘时，给他找出了2个大毛病，（1）左肺癌写成右肺癌（2）<span style="FONT-SIZE: 10.5pt; FONT-FAMILY: 宋体; mso-ascii-font-family: 'Times New Roman'; mso-hansi-font-family: 'Times New Roman'; mso-bidi-font-family: 宋体; mso-font-kerning: 1.0pt; mso-ansi-language: EN-US; mso-fareast-language: ZH-CN; mso-bidi-language: AR-SA;">左侧上颌窦后方翼突外侧板转移写成脑转移。回去问她，她还说就是脑转移。不然她用的脑转移的化疗药（威猛）就是瞎搞。<span style="FONT-SIZE: 10.5pt; FONT-FAMILY: 宋体; mso-ascii-font-family: 'Times New Roman'; mso-hansi-font-family: 'Times New Roman'; mso-bidi-font-family: 宋体; mso-font-kerning: 1.0pt; mso-ansi-language: EN-US; mso-fareast-language: ZH-CN; mso-bidi-language: AR-SA;">我说我要去看韩宝惠的专家门诊，她马上又变得很虚心，说你快去问一下这些顶级大师，他如果说不用挂威猛，我们就取消。真是哭笑不得。<span style="FONT-SIZE: 10.5pt; FONT-FAMILY: 宋体; mso-ascii-font-family: 'Times New Roman'; mso-hansi-font-family: 'Times New Roman'; mso-bidi-font-family: 宋体; mso-font-kerning: 1.0pt; mso-ansi-language: EN-US; mso-fareast-language: ZH-CN; mso-bidi-language: AR-SA;">我妹夫什么都不知道，光听医生的，吃亏了还不知道。我通过近2个月的上网查询，也了解了一些常识，觉得一定要自己学习，自己拿主意，像以马那样。以下我将我妹妹的治疗史公布于下，一来可能对大家有个启示，二来也希望好心人指点，怎么做更好，不留遗憾。以后我还会陆续发布请友好关注。（病史一）诊断史病人自感背脊疼痛已有2年半，上颌窦部、髋关节部疼痛及咳嗽已有3月余。    <chsdate year="2007" month="1" day="9" islunardate="False" isrocdate="False" wst="on"></chsdate><chsdate></chsdate><chsdate></chsdate><chsdate></chsdate>2007-1-9<chsdate></chsdate><chsdate></chsdate><chsdate></chsdate><chsdate></chsdate>  家乡镇医院CT检查报告单：（1）左肺下叶背段占位，肺癌可能，建议穿刺检查   （2）左侧胸膜增厚    <chsdate year="2007" month="1" day="13" islunardate="False" isrocdate="False" wst="on"></chsdate><chsdate></chsdate><chsdate></chsdate><chsdate></chsdate>2007-1-13<chsdate></chsdate><chsdate></chsdate><chsdate></chsdate><chsdate></chsdate>上海胸科医院核医学科报告单：  右第8后肋、右股骨上端、左裸关节放射性异常浓聚，转移性骨肿瘤病变    <chsdate year="2007" month="1" day="15" islunardate="False" isrocdate="False" wst="on"></chsdate><chsdate></chsdate><chsdate></chsdate><chsdate></chsdate>2007-1-15<chsdate></chsdate><chsdate></chsdate><chsdate></chsdate><chsdate></chsdate>上海胸科医院肺活量测试：肺功能测定：通气功能示气道阻塞。    <chsdate year="2007" month="1" day="15" islunardate="False" isrocdate="False" wst="on"></chsdate><chsdate></chsdate><chsdate></chsdate><chsdate></chsdate>2007-1-15<chsdate></chsdate><chsdate></chsdate><chsdate></chsdate><chsdate></chsdate>上海胸科医院穿刺检查报告：  左下肺腺癌    <chsdate year="2007" month="1" day="16" islunardate="False" isrocdate="False" wst="on"></chsdate><chsdate></chsdate><chsdate></chsdate><chsdate></chsdate>2007-1-16<chsdate></chsdate><chsdate></chsdate><chsdate></chsdate><chsdate></chsdate>上海455医院

ET-CT报告单：（1）       左肺下叶背段中央型肺癌伴纵隔淋巴结转移，左侧上颌窦后方翼突外侧板、右侧第8后肋及右侧股骨颈股骨转移瘤。（2）       左肺下后基底段软组织密度影，FDG未见异常摄取，考虑为慢性炎性病变。（3）       胆囊切除术后；子宫附件切除术后改变。（4）       大枕大池。    <chsdate year="2007" month="1" day="25" islunardate="False" isrocdate="False" wst="on"></chsdate><chsdate></chsdate><chsdate></chsdate><chsdate></chsdate>2007-1-25<chsdate></chsdate><chsdate></chsdate><chsdate></chsdate><chsdate></chsdate>上海85医院CT报告  检查所见：右侧股骨颈、股骨头可见局限性低密度骨质破坏区，边缘欠光整。余所示诸骨未见骨质破坏，两髋关节在位，关节间隙未见明显破坏 印象：右侧股骨颈、股骨头骨质破坏，结合病史及外院

ET片符合转移。

xiexie158 · 发表于 2007-3-7 22:49:32

（病史二）治疗史化疗：（上海85医院）第一疗程       <chsdate wst="on" isrocdate="False" islunardate="False" day="23" month="1" year="2007">2007-1-23</chsdate>~1-27长春瑞滨   10mg*8顺铂       20mg*4伊班膦酸钠   1ml*4 咸麦宁胶囊    <chmetcnv wst="on" tcsc="0" numbertype="1" negative="False" hasspace="False" sourcevalue=".4" unitname="g">0.4g</chmetcnv>*240胸腺肽       5ml*11 伽玛刀：（1）肺  部：8次   （手术日：1-23， 1-25， 1-27，1-29， 2-1，2-3，2-5，2-7）（2）股骨部：8次   （手术日：1-25， 1-27， 1-29，2-1， 2-3， 2-5， 2-7， 2-9）（3）上颌窦部：1次（1次7点）   （手术日：2-5）

伊豆子 · 发表于 2007-3-8 14:51:30

楼主你好！你妹妹现在的身体状况怎么样呢？她本人的感受如何？她知道自己的真实病情了吗？

xiexie158 · 发表于 2007-3-8 22:13:57

TO：伊豆子现在她还刚在化疗，第二疗程还没结束。癌胚抗原指数算是都恢复正常了。各种疼痛也减轻了。她本人基本上都清楚，瞒不过本人的。请原谅我不会搞，昨天搞了很久也发不上去，字也打得很慢。今天继续。 中药：<chsdate wst="on" isrocdate="False" islunardate="False" day="16" month="1" year="2007">1月16日</chsdate> : 方-1*14剂  (85医院退休医生韩国霖)生黄箐？30，
炒白术15，防风15，猪苓？30，麦冬30，半枝莲30，白花蛇舌草30，淡竹叶15，蛇莓30，七叶一枝花30，僵蚕30，干蟾皮10，仙鹤草30，白毛藤30，六月雪30，灼山甲15，全蝎8，蜈蚣3条，天龙3条，三稜？30，蕲术？30，丹参30，桃仁15，水蛭15，潞党参15，焦神曲15，焦山楂15，青陈皮各6，香附15，炒川栋？10，太子参30。加研粉：
蛤蚧1对，白参？50，半夏50，川贝50，草河车50，山茨菇50，陈皮10，百合50。

xiexie158 · 发表于 2007-3-8 22:19:12

（续）<chsdate wst="on" isrocdate="False" islunardate="False" day="5" month="2" year="2007">2月5日</chsdate>：
方-2*21剂  （85医院退休医生韩国霖）南北河参？各30，天麦冬各30，淡竹叶30，蛇莓30，僵蚕30，灼山甲15，全蝎8，干蟾皮10，天龙3条，六月雪30，七叶一枝花30，半枝莲30，白花蛇舌草30，半边莲15，生薏仁30，丹参15，当归30，女贞子30，巴*肉15，鸡血藤30，何首乌30，熟枣仁30，合欢皮30，太子参30。这位医生的药中有很多是毒的，也很贵。要100元左右。每帖要一大锅，小锅还不能煎。并且牛皮特别大，说是只要吃他的药，其他什么都不用治疗就可以保证好。不太踏实，后来就换了去龙华医院。

xiexie158 · 发表于 2007-3-8 22:24:18

<chsdate wst="on" isrocdate="False" islunardate="False" day="23" month="1" year="2007">（续）</chsdate><chsdate wst="on" isrocdate="False" islunardate="False" day="23" month="1" year="2007">以下是癌胚抗原指数：</chsdate><chsdate wst="on" isrocdate="False" islunardate="False" day="23" month="1" year="2007">2007-1-23</chsdate> AFP     5.1     ≤20CEA     20.3   ≤20CA50     6.8   ≤20CA19-9  26.6   ≤37CA125   53.6   ≤34CA15.3  21.2   ≤30CA72-4  1.86   ≤3SCC 2.95       ≤3 <chsdate wst="on" isrocdate="False" islunardate="False" day="27" month="2" year="2007">2007-2-27</chsdate> AFP     6.3     ≤20CEA     12.7   ≤20CA50     6.1   ≤20CA19-9  18.9   ≤37CA125   25.2   ≤34CA15.3  16.1   ≤30从数据上来看，都已经恢复正常了。但不知道这些数据意味着什么。

伊豆子 · 发表于 2007-3-9 13:38:49

楼主的数据真是详细，有经验的病友和斑竹能过来一起讨论讨论吗？？

xiexie158 · 发表于 2007-3-11 21:37:30

3月7日去上海龙华医院看了刘嘉湘的中医门诊。以下是药方，现转抄于下，看看是否对各位有参考意义。<span style="FONT-SIZE: 10.5pt; FONT-FAMILY: 宋体; mso-ascii-font-family: "Times New Roman"; mso-hansi-font-family: "Times New Roman"; mso-bidi-font-family: "Times New Roman"; mso-font-kerning: 1.0pt; mso-ansi-language: EN-US; mso-fareast-language: ZH-CN; mso-bidi-language: AR-SA;">生黄芪<span lang="EN-US" style="FONT-SIZE: 10.5pt; FONT-FAMILY: "Times New Roman"; mso-font-kerning: 1.0pt; mso-ansi-language: EN-US; mso-fareast-language: ZH-CN; mso-bidi-language: AR-SA; mso-fareast-font-family: 宋体;">30<span style="FONT-SIZE: 10.5pt; FONT-FAMILY: 宋体; mso-ascii-font-family: "Times New Roman"; mso-hansi-font-family: "Times New Roman"; mso-bidi-font-family: "Times New Roman"; mso-font-kerning: 1.0pt; mso-ansi-language: EN-US; mso-fareast-language: ZH-CN; mso-bidi-language: AR-SA;">，北沙参<span lang="EN-US" style="FONT-SIZE: 10.5pt; FONT-FAMILY: "Times New Roman"; mso-font-kerning: 1.0pt; mso-ansi-language: EN-US; mso-fareast-language: ZH-CN; mso-bidi-language: AR-SA; mso-fareast-font-family: 宋体;">30<span style="FONT-SIZE: 10.5pt; FONT-FAMILY: 宋体; mso-ascii-font-family: "Times New Roman"; mso-hansi-font-family: "Times New Roman"; mso-bidi-font-family: "Times New Roman"; mso-font-kerning: 1.0pt; mso-ansi-language: EN-US; mso-fareast-language: ZH-CN; mso-bidi-language: AR-SA;">，天麦冬各<span lang="EN-US" style="FONT-SIZE: 10.5pt; FONT-FAMILY: "Times New Roman"; mso-font-kerning: 1.0pt; mso-ansi-language: EN-US; mso-fareast-language: ZH-CN; mso-bidi-language: AR-SA; mso-fareast-font-family: 宋体;">15<span style="FONT-SIZE: 10.5pt; FONT-FAMILY: 宋体; mso-ascii-font-family: "Times New Roman"; mso-hansi-font-family: "Times New Roman"; mso-bidi-font-family: "Times New Roman"; mso-font-kerning: 1.0pt; mso-ansi-language: EN-US; mso-fareast-language: ZH-CN; mso-bidi-language: AR-SA;">，女贞子<span lang="EN-US" style="FONT-SIZE: 10.5pt; FONT-FAMILY: "Times New Roman"; mso-font-kerning: 1.0pt; mso-ansi-language: EN-US; mso-fareast-language: ZH-CN; mso-bidi-language: AR-SA; 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FONT-FAMILY: 宋体; mso-ascii-font-family: "Times New Roman"; mso-hansi-font-family: "Times New Roman"; mso-bidi-font-family: "Times New Roman"; mso-font-kerning: 1.0pt; mso-ansi-language: EN-US; mso-fareast-language: ZH-CN; mso-bidi-language: AR-SA;">，怀牛夕<span lang="EN-US" style="FONT-SIZE: 10.5pt; FONT-FAMILY: "Times New Roman"; mso-font-kerning: 1.0pt; mso-ansi-language: EN-US; mso-fareast-language: ZH-CN; mso-bidi-language: AR-SA; mso-fareast-font-family: 宋体;">12<span style="FONT-SIZE: 10.5pt; FONT-FAMILY: 宋体; mso-ascii-font-family: "Times New Roman"; mso-hansi-font-family: "Times New Roman"; mso-bidi-font-family: "Times New Roman"; mso-font-kerning: 1.0pt; mso-ansi-language: EN-US; mso-fareast-language: ZH-CN; mso-bidi-language: AR-SA;">，桑寄生<span lang="EN-US" style="FONT-SIZE: 10.5pt; FONT-FAMILY: "Times New Roman"; mso-font-kerning: 1.0pt; mso-ansi-language: EN-US; mso-fareast-language: ZH-CN; mso-bidi-language: AR-SA; mso-fareast-font-family: 宋体;">15<span style="FONT-SIZE: 10.5pt; FONT-FAMILY: 宋体; mso-ascii-font-family: "Times New Roman"; mso-hansi-font-family: "Times New Roman"; mso-bidi-font-family: "Times New Roman"; mso-font-kerning: 1.0pt; mso-ansi-language: EN-US; mso-fareast-language: ZH-CN; mso-bidi-language: AR-SA;">，地龙<span lang="EN-US" style="FONT-SIZE: 10.5pt; FONT-FAMILY: "Times New Roman"; mso-font-kerning: 1.0pt; mso-ansi-language: EN-US; mso-fareast-language: ZH-CN; mso-bidi-language: AR-SA; mso-fareast-font-family: 宋体;">30<span style="FONT-SIZE: 10.5pt; FONT-FAMILY: 宋体; mso-ascii-font-family: "Times New Roman"; mso-hansi-font-family: "Times New Roman"; mso-bidi-font-family: "Times New Roman"; mso-font-kerning: 1.0pt; mso-ansi-language: EN-US; mso-fareast-language: ZH-CN; mso-bidi-language: AR-SA;">，骨碎补<span lang="EN-US" style="FONT-SIZE: 10.5pt; FONT-FAMILY: "Times New Roman"; mso-font-kerning: 1.0pt; mso-ansi-language: EN-US; mso-fareast-language: ZH-CN; mso-bidi-language: AR-SA; mso-fareast-font-family: 宋体;">15<span style="FONT-SIZE: 10.5pt; FONT-FAMILY: 宋体; mso-ascii-font-family: "Times New Roman"; mso-hansi-font-family: "Times New Roman"; mso-bidi-font-family: "Times New Roman"; mso-font-kerning: 1.0pt; mso-ansi-language: EN-US; mso-fareast-language: ZH-CN; mso-bidi-language: AR-SA;">，仙灵脾？<span lang="EN-US" style="FONT-SIZE: 10.5pt; FONT-FAMILY: "Times New Roman"; mso-font-kerning: 1.0pt; mso-ansi-language: EN-US; mso-fareast-language: ZH-CN; mso-bidi-language: AR-SA; mso-fareast-font-family: 宋体;">15<span style="FONT-SIZE: 10.5pt; FONT-FAMILY: 宋体; mso-ascii-font-family: "Times New Roman"; mso-hansi-font-family: "Times New Roman"; mso-bidi-font-family: "Times New Roman"; mso-font-kerning: 1.0pt; mso-ansi-language: EN-US; mso-fareast-language: ZH-CN; mso-bidi-language: AR-SA;">，鸡血藤<span lang="EN-US" style="FONT-SIZE: 10.5pt; FONT-FAMILY: "Times New Roman"; mso-font-kerning: 1.0pt; mso-ansi-language: EN-US; mso-fareast-language: ZH-CN; mso-bidi-language: AR-SA; mso-fareast-font-family: 宋体;">30<span style="FONT-SIZE: 10.5pt; FONT-FAMILY: 宋体; mso-ascii-font-family: "Times New Roman"; mso-hansi-font-family: "Times New Roman"; mso-bidi-font-family: "Times New Roman"; mso-font-kerning: 1.0pt; mso-ansi-language: EN-US; mso-fareast-language: ZH-CN; mso-bidi-language: AR-SA;">，鸡内金<span lang="EN-US" style="FONT-SIZE: 10.5pt; FONT-FAMILY: "Times New Roman"; mso-font-kerning: 1.0pt; mso-ansi-language: EN-US; mso-fareast-language: ZH-CN; mso-bidi-language: AR-SA; mso-fareast-font-family: 宋体;">12

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